Wednesday, December 19, 2012

happy tears.

last wednesday we heard the worst news possible. that reese's tumor had grown.

i, genuinely, did not think we'd ever hear that. it came as such a punch to the gut. how this baby, who seemed perfectly okay on the outside, had such horrible things on the inside was beyond me.

the rest of the week was getting ready for surgery yesterday.

she had had chemo on tuesday. it was a long day - but we had no idea that it wasnt working.

Let #tumorkillingtuesday begin!! #chemointumorout #gingerfight

Started off smiley but now asleep ❤ #tumorkillingtuesday #chemointumorout #gingerfight #reesey


thursday was an endo appointment.

friday was an MRI. we went to the outpatient place for that -- and it was so different. they accessed her port, we hung out, i held her and hummed while they put her to sleep... then i laid her down and waited for her to come out.

Pre-MRI. She is "smizing" ;) you know, smiling w her eyes #gingerfight #reesey #prayersforreesey #chemointumorout

From yesterday before MRI #reesey #gingerfight


saturday, EJ hung out with reese while i took ASM to the mall for outfits for photos that we were having done on sunday. i will have a whole blog post on those [absolutely amazing, breathtaking, omgilovethem] photos.

we spent the week and weekend loving reese. loving her home. loving every tiny bit about her. loving her in bed with us, loving watching her with her sisters, loving the hugs, kisses, and snarky stares... all of it. aidan and sawyer rub her feet with lotion all the time. reese just lays and watches and relaxes.

Someone is funny today lol #reesey #gingerfight #prayersforreesey

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Lol silly #reesey #gingerfight

My sweet #reesey #gingerfight

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monday was pre-op. i went in to the pre-op appointment and then had to go downstairs for lab draws. i went back to grab sawyer, then aidan... then EJ called me and said that he went to check her lab results online and that her sodium was at 128. that is so so low.

he called the endo line. and long story short, they wanted us to be admitted that night. i was already taking ASM over to my parents house that night bc we had to leave so early on tuesday - so i dropped them off and headed down. we went to the oncology floor and just watched her sodiums so that we could still have surgery that next morning.

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she really felt good. like normal reese. this is how she has been at home. so so happy. it was nice to see her smiley face all evening.

EJ stayed monday night while i went home to get some things for the next day. after no sleep, lots of stress, and worried bones, she went down to surgery at about 9am? ish? i dont really remember.

From this morning #reesey #gingerfight #prayersforreesey #daddysgirl

Pre-op :( #reesey #gingerfight


EJs dad was in town so we all hung out down on the lower level waiting for calls. by 2pm, she was out and she looked dang good. some pain, of course, so we gave her meds for that. everyone seemed happy. the doctors seemed to believe that our neuro surgeon had done an amazing job, but we would know nothing til the MRI.

Oh sweet baby. #gingerfight #prayersforreesey #reesey all done. Now to wait for the neurosurgeon to talk to us. Way to go, strong girl!!!!

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in true reesey form, in no time, she wanted to sit up and EAT! it was amazing. i was just shocked that she was so.... okay.

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She sat up on her own, asked to get down and move to the couch, and is eating dinner  #reesey is so damn awesome #gingerfight #rainbowscar

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i stayed last night and loved on her as best as i can with her being in the crib. i brushed her hair 100x. i lotioned her hands to keep her happy when nurses messed with her.

this morning we had an MRI. i walked with her down, put her on the bed to go to sleep... and left. no news until this afternoon.

a neurologist came in and told me the best news ever.... they got out MORE than they had hoped. originally, she had hoped for 40%, but the fellow told us that if he had to guess, he'd guess about 80%!!!!!!! ::happydance::

our sweet strong girl.

eta: i should add. we talked to the neuros at st. jude last week as well. we overnighted our past scans. the neuro said that our dr was a badass (ok, he said it in more professional terms, im sure lol) and that he trusts her to do the best and that his approach and decision would be the same. and that ALSO, our oncologist is a consult for st. jude --- so yes, we are in good hands. it completely solidified our decisions and im so glad since our neurosurgeon did [as he expected] such an awesome job.

she looks like she got into a fight, today because of swelling. but like everyone said "whats the other guy look like?" ;) and if that other guy is the tumor --- he looks bad :)

A little surgery swelling. Her eye is actually swollen shut now. It'll get worse looking before better ❤ #gingerfight #reesey #rainbowscar #prayersforreesey

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the oncologists came in to talk to us and we have an entirely new chemo plan with 4 meds and a ridiculous schedule with side effects that will have us be in patient for a few days a month.

but for now --- we are over the moon.

thank you thank you for your prayers. God listened. He got us into the ER last week so our NS could cut that asshole tumor out... so we could start new chemo on the rest... so reese could get better.

you are all amazing prayer warriors, friends, supporters, and family.

more updates soon. but for now - thank you. and praise God.


55 comments:

  1. sweet relief, what wonderful news!!! <3 many more prayers headed reeseys way!

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  2. Best. News. Ever. Like EVER. <3 love this blog post. Still thinking of you guys everyday!

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  3. Your title of this post says it all. Praise Jesus!!! I'm
    So so so happy for her and y'all. I'm holding back tears. Many more prayers coming your way! Prayers of praise and prayers for continued healing!!! Xoxoxo!!!

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  4. What a strong little warrior you have! Thank you, God. Have been thinking of you and praying daily.Reese is a fighter!

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  5. Thank you. Amanda, for sharing this. Thank you, surgeons, for being good at what you do. Thank you, Reese, for being so patient with what you're being put through. Thank you, all this is good and right, for this chapter ending this way. <3

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  6. When this is all over and y'all look bad on it someday, I'm hoping and praying that the worst part is that Reesey isn't a dude and can't shave her head to show off those awesome scars. Keep fighting, sweet girl! And to the rest of you: take care of yourselves in the process. xox

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  7. Such wonderful news! She's an amazing fighter. Continued prayers for everyone coming your way.

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  8. tears! such wonderful news! you all have been on the forefront of our hearts, minds, and prayers and will continue to be! <3

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  9. I am in tears. What wonderful news. You remain in my prayers. Hugs to all of you! <3

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  10. Reesey is so beautiful and strong! We continue to pray for you and keep you in our thoughts.

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  11. Reesey is so beautiful and strong! We continue to pray for you and keep you in our thoughts.

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  12. What a little fighter your guys have there!! You continue to be in my prayers and wish you all a blessed Christmas.

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  13. So. Stinkin'. Happy! Now to show the other 20% who's boss!!!

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  14. So so so HAPPY!! She is truly a ROCK STAR!! Praise the Lord!! Keep fighting! I will keep praying!! Hugs to you all!!

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  15. What wonderful news! I will continue to keep Reese and your family in my thoughts and prayers.

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  16. so thrilled...going to bed in a good mood. prayers your way.

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  17. What a wonderful update! I have been thinking and praying for Reese and your family. She is such a trooper and cute as can be! I'm so happy for you guys!

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  18. Praise God is right! I've been praying hard for your little girl. She's a fighter!

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  19. YIPPEEEE!!! I was praying HARDER and HARDER than I have ever prayed before! I've never felt so concentrated as when I've been praying for your baby girl. My son is only a few months younger and they look strikingly similar. Praying for Reese like she is one of mine. This is going to work. Reese is WINNING!

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  20. Happy tears in deed! Praise God!!! Continued thoughts and prayers are with you all. God is good, and he is working miracles in Sweet Reesey!

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  21. I am beyond happy for you all. Your pictures are so sweet, I love them. And your other girls are A-MAZING sisters! The pictures of them rubbing Reese's feet brought tears to my eyes. I've been praying for you all and I will continue to do so. It sounds like you're in God's hands in that hospital.

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  22. my heart goes out to your family and your little girl. We are here with you and we wishe her a fast recovery :)Thank you for sharing your story with us,She is a true little fighter:) and we have her and your family in our prayers:)

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  23. I just found your blog through a photographer I follow on Facebook and I became addicted in an instant.

    I have read nearly all your posts and I would like to say that you have a strong family and an even stronger little girl! 80% is SO great! I just had to leave a comment and agree with what everyone is saying- God is good! So good!

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  24. Praise the Lord!!! Reese is soooooo cute and sooooooo strong :-) I have a toddler too, and your journey really pulls at my heart strings.

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  25. What an amazing, superhero child! Praise God for good doctors, and good news!

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  26. Just read about your sweet baby. I found out about her and her fight through my friend, Jen's facebook. I just said a prayer for her and for everyone around her to be strong.

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  27. Thanks for the update! I am sooo happy for you guys! Merry Christmas!

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  28. such a sweet family! many prayers for reesey!

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  29. So, so, so incredibly happy to hear this news!! She is such a strong little thing, continued thoughts and prayers for you guys!!!

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  30. I have happy tears as well. Still praying for that rockstar.

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  31. I am in (happy) tears reading your update. My husband and I pray for Reese every night. God is good!!!!!

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  32. So happy for you guys that I'm tearing up! Go Reesey!

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  33. GREAT news Amanda!!! The Lord works in mysterious ways!!! <3

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  34. That sounds like a good Christmas gift. Reesey is such a strong little girl! So happy to hear such amazing news! Merry Christmas :)

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  35. Such an amazing little angel on earth! I'm so glad to hear good news for you guys. Will continue to pray!

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  36. What wonderful news...Merry Christmas Reesey and your family as well. You are all in my thoughts and prayers. I think of you and your little angel often! GO Reesey!!! You are gonna beat this sweet little girl!

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  37. Oh thank God!!!!!! I am so happy for you all. What a ride to be on?!?! I hope Reese just gets better and better.

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  38. So happy for your family!! Merry Christmas

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  39. yes!!! So happy for you! Will keep you all in my thoughts and prayers.

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  40. I love this post! I've read it 3 times today and poured over the pictures. It just feels so GOOD to read GOOD news.

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  41. So pleased to hear the new about little Reesey! Blogging is really such an amazing and interesting concept. I find myself randomly wondering how Reese and the family are doing, a little girl who doesn't even live in the same country as me, and whom I've never met. But still I hope for her, I send her light and love, I've cried for you guys, good and sad tears. It's really a very cool thing and I think you're very brave to share your heart and soul with so many people across the web! She is a very special and loved little girl, and I'm so happy to read the good news in this post!... Thinking of you guys! Merry Christmas from Canada!

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  42. I stumbled across your blog recently and am so inspired by the strength of your family and especially your sweet Reesey. Bless her heart!! I have been praying for you and your family.
    - Happy Holidays

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  43. Praying hard for you guys and thank God for such great news for Reesey. Glad to her that St. Judes trusts your doc's judgement. sounds like you are in good hands. hope you zap out the other 20 asap. love, mcrib

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  44. I'm praying so hard for you and your little girl! What a strong little warrior she is! Wishing you all a wonderful holiday!

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  45. you don't know me but i've been following your story for a while. i feel like i post the same thing each and every time but i just wanted you to know that not a day goes by that i don't think of your sweet girl and your family. big hugs to all of you. have a very merry christmas!

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  46. My daughter is one and when we pray at night we pray for Reese. I've never met you but I feel like I've walked along and cried sad and happy tears with you all. We send our love and more prayers!

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