Thursday, February 28, 2013

soccer mom.

so sawyer started soccer.

this is aidan's third season. she loves it. but she also doesnt mind wearing jeans or t-shirts.

when sawyer put on shorts and a tee today, i barely recognized her. then she topped it off with a sparkly red headband and then i knew that she was still under there ;)

EJ took aidan to practice and i took the other ones to sawyer's.

they are called the "goal diggers". no we didnt choose it. yes i think its awesome.

it was so fun to watch her. she has no idea that in soccer you cant use hands. even though we told her 20394820 times. so we told her to put her hands in her pocket lol


2013-02-28_002 2013-02-28_003 sawyer first soccer4 sawyer first soccer2 sawyer first soccer6 2013-02-28_001 sawyer first soccer1 2013-02-28_004 sawyer first soccer9

sawyer first soccer10 sawyer first soccer14
sawyer first soccer15

this has been an interesting week for us with reese's meds.

we havent't had to give her DDAVP shot since monday morning at 5am. but let me explain this again --

so we give her the shot when she "pees out". that means that (around every 12 hrs or so) she starts to pee a lot. a big diaper. or 2 larger diapers. then the shots stops her body from peeing out again. usually at this point in the day, her ins and outs are out of wack --- there is more OUT than in - which then leaves her sodiums to go higher.

so she has not done all of that ^^^ since monday. on tuesday we went in for labs. sodiums were 140. awesome. then i talked to the endos on wednesday they said labs today. so i went to labs - sodiums 145. awesome. soooo they want me to go back tomorrow. if she does flip to more on OUT than IN tonight, then we're at a good spot to give the DDAVP, but they only want a 1/2 dose. which is, like, almost non-existant on the syringe. like, we have to make up the spot its so small lol

they seem to be baffled? lol i dont really know. she should be peeing out bc of her DI. her sodiums should be all "omg come in and stay for 24 hours!!!" and honestly, i expected that today... but no. so we shall see, i guess what they are tomorrow. the math right now says about even on I/O so we may be doing that 1/2 shot tonight, but, i mean, thats the first time since monday early.... its just weird.


reese in pantry1

coming up for reese next? MRI at 730am on march 19th. so i'll get there about 6am, hide all drinks and food from her (the worst part of the day) and then MRI. then we'll go down to chemo.

she feels good. she is funny and happy and dancing (check out my vine --- punkfictionv4 --- there are dancing vids haha). she just hangs out and laughs and is so... normal.

we're having good days. thank you all for your prayers and thoughts and love. i'll update on the sodiums as soon as i know tomorrow :)

10 comments:

  1. Haha I love the pictures of Sawyer! That's so fun that she started soccer. I can't wait to try it with Mikaela and Leo! Reese looks so darn cute by the pantry hahahha I'll be thinking of her on the 19th, and that's wonderful that she's doing so well!! xoxo

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  2. I have to say again Amanda, I simply adore your photography! Wow, how you capture each of your girls personalities is amazing. I've never read a blog before and I look every day now to see more amazing pictures and to see how sweet Reese is doing. So glad Kelli M posted about you! Prayers everday from Carrollton!

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  3. I have to say again Amanda, I simply adore your photography! Wow, how you capture each of your girls personalities is amazing. I've never read a blog before and I look every day now to see more amazing pictures and to see how sweet Reese is doing. So glad Kelli M posted about you! Prayers everday from Carrollton!

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  4. I am so glad that Reese is doing so well. I think of her daily and pray for His merciful, healing touch. What a blessing you have been given to get to raise and love on these four beautiful babies!

    Love the pics. You continue to be such an inspiration to me in so many ways. <3

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  5. That's great!! Her body is doing what its suppose to be doing and that's one less med that she has to take. She looks soo good in the photos.

    Sawyer looks like she had a blast at soccer.

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  6. Lol. They look so cute. I think it's always fun to watch these little ones. What's even better is seeing them develop their skills at such a young age. I have seen kids demonstrate a great amount of control over the ball, despite the fact that their little legs seemed to barely be able to cover much distance quickly.

    I see that the little one is looking on. Probably wondering about their own spot on the team. Thanks for sharing your pictures.

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