this is aidan's third season. she loves it. but she also doesnt mind wearing jeans or t-shirts.
when sawyer put on shorts and a tee today, i barely recognized her. then she topped it off with a sparkly red headband and then i knew that she was still under there ;)
EJ took aidan to practice and i took the other ones to sawyer's.
they are called the "goal diggers". no we didnt choose it. yes i think its awesome.
it was so fun to watch her. she has no idea that in soccer you cant use hands. even though we told her 20394820 times. so we told her to put her hands in her pocket lol
this has been an interesting week for us with reese's meds.
we havent't had to give her DDAVP shot since monday morning at 5am. but let me explain this again --
so we give her the shot when she "pees out". that means that (around every 12 hrs or so) she starts to pee a lot. a big diaper. or 2 larger diapers. then the shots stops her body from peeing out again. usually at this point in the day, her ins and outs are out of wack --- there is more OUT than in - which then leaves her sodiums to go higher.
so she has not done all of that ^^^ since monday. on tuesday we went in for labs. sodiums were 140. awesome. then i talked to the endos on wednesday they said labs today. so i went to labs - sodiums 145. awesome. soooo they want me to go back tomorrow. if she does flip to more on OUT than IN tonight, then we're at a good spot to give the DDAVP, but they only want a 1/2 dose. which is, like, almost non-existant on the syringe. like, we have to make up the spot its so small lol
they seem to be baffled? lol i dont really know. she should be peeing out bc of her DI. her sodiums should be all "omg come in and stay for 24 hours!!!" and honestly, i expected that today... but no. so we shall see, i guess what they are tomorrow. the math right now says about even on I/O so we may be doing that 1/2 shot tonight, but, i mean, thats the first time since monday early.... its just weird.
coming up for reese next? MRI at 730am on march 19th. so i'll get there about 6am, hide all drinks and food from her (the worst part of the day) and then MRI. then we'll go down to chemo.
she feels good. she is funny and happy and dancing (check out my vine --- punkfictionv4 --- there are dancing vids haha). she just hangs out and laughs and is so... normal.
we're having good days. thank you all for your prayers and thoughts and love. i'll update on the sodiums as soon as i know tomorrow :)