Sunday, October 27, 2013

new memories.

the last 2 weeks or so have been so busy. right after the MRI, reese had an ear infection.

its funny bc i was just talking, on MRI night, to another brain tumor mom - and we had said we deserve "just an ear infection" lol since everything is so much bigger for us. its never "just" anything. but that wkend it was. and let me say - if i hadnt had an MRI on wednesday, i would have been absolutely (more) insane for the way she was acting.

even so, she slept the day away on friday and i called the onc nurses asking "is this normal?!?!" as if i am a first time mom. but her counts had already dropped and we expected fever. which she got friday night. EJ took her in, they did a chest x-ray to count out pneumonia (she had a cough, too), and then started up meds. when i got there saturday evening, she only felt a bit better. we swapped for the night and BOOM - sunday morning was a happy girl :D

aaf918f0390c11e381ef22000a9f0507_7 26d6feda398d11e3a47822000a9f3c30_7
we spent last week running around to different appointments, liken normal. PT, OT, labs... we got her sized for a new AFO boot and also got her...
walker!! :))))


it'll be easier when she has her boot to brace her foot, but she really does think its nifty. for those looking, this is a rifton pacer. in hot pink. ;)

the rest of the week was pretty "normal". it was spirit week at school for A and S, dance classes, running errands, and then on friday aidan got "mav of the month" for her class - so we went up and cheered for her. :)

cdf8a70a3ca711e39ebd22000aaa21ed_7 1ab2d5123cac11e3b07922000a1fbd9b_7 9e077ed23cba11e3b2aa22000aeb0f9e_7 65fcdbe83d7f11e3bf4822000a1ddbe2_7 c82a47d43bdf11e3999722000a1fcf03_7 a9a165763b2c11e3880022000aeb1b92_7 b9759f6c3a9b11e3be1e22000aaa041f_7 8d466c883a5911e3b83422000ab5a88f_7 507bf97c3a6c11e38b2822000aa80213_7 4c1b81b639e211e39b9b22000a1f96c5_7 83654dca3eb811e398ee22000ab78009_7 ff1353a43f1711e39ca422000a1fb149_7 762636e43c1311e386a922000a1fb703_7
THEN yesterday, we went to the pumpkin patch. last year, we had a sick baby. it was so weird bc i remember wanting so badly to DO those halloween things bc i had this weird feeling that i'd regret it. i can't explain it. this year, i just couldnt wait for her to have the fun that i knew she'd have.
and she did. as you can see, still a daddy's girl. but this year they actually picked out pumpkins (that she has been carrying around and even sleeping with lol). 
all the kids had a blast. until i tried to get them to take a pic together. snort. maybe next year.
2013 pumpkin patch4 2013-10-27_002 2013 pumpkin patch11 2013 pumpkin patch17 2013 pumpkin patch12 2013 pumpkin patch19 2013-10-27_007 2013-10-27_004 2013-10-27_005 2013-10-27_006 2013-10-27_003 2013 pumpkin patch22 2013-10-27_001

next up: costumes, praying for NO RAIN on halloween for scare on the square and ToTing, and gearing up for in-patient chemo again the first week of november.


  1. Reese's nail polish! What a little lady. And you just have to frame one of the last pics of all 4. It's a good memory for you all!!! :)

  2. Please don't take this wrong, howeverI am so glad to see not so perfect pics of your beautiful babies... I am envious of your camera and your amazing photography skills.. I read up on tips on your other blogs and maybe one day I will get there. I am so happy for you that this year you are getting to complete all those little things on your list, although normally I take for granted the "normal" moments as you say, but this year I am really taking the time to relish in it all and without your blog and without Reesey's story I don't know if the little things would get noticed. Thanks for writing about your details and letting me see that the little things are truly the things that matter!! Praying for you to have the "normal" mommy moments this holiday season and lots of sleep and comfort.