ok finally writing this post :)
not much to say except awesome time, the girls got platinum, and they learned a lot and had fun!!
as a special little thing, i made a video of some of the spring fun things that aidan has done at DS this year :)
Wednesday, April 24, 2013
dupree dance competition and convention.
Wednesday, April 17, 2013
bluebonnets and disney on ice.
lemme do a quick update first :) then this post will be a SLEW of photos from the past few wkends. some of my favorite photos pretty much ever.
so some of you know that reese had an MRI on monday to check, what i thought they said was fluid, but now they are saying blood. anyway, that area is smaller and her tumor seems to be checking out find so we won't have another MRI for 2-3 more months (although, ill be damned if we wait 3 months haha).
last week, reese's port wasnt drawing back blood at all. so yesterday she got a new port put in. i was supposed to be there by 6:10am.
um.
at 6:30am, EJ's alarm went off and holy shit were we late! I called up to admitting, told them what was up, and we got there by about 7:30am. we get checked in, head down to pre-op and i talk to the surgeon. ideally, he wanted to put it in the same spot (belly area) on the other side. but thats where her shunt goes down into. so he ended up having to put it on the top right. she's sore, so its hard to pick her up like we're used to, but she seems to be okay with it.
we went to D6 and started chemo and fluids. last time, we learned that she needed to be on .9% saline, but they, again, put her on .45%. sigh. the day nurse did it right, i think, but reese had not drank her bottle in a while and so when the night nurse came and brought a new bag - i checked it. i went out and was like "heyyyy...." lol so we finally agreed on the .675% (3/4th) saline and her sodiums perked back up - i think the lowest they got were 135 or so, but she stays right around 142-145 so thats quite a drop. she puked once, pretty big, and gagged a lot, but she seems to be okay today. we checked out at about 12:30pm or so today. so its super nice to already be home :)
NOW on a photo front ---
these are from disney on ice. a sweet amazing person sent us 6 (omg so close) tickets. the girls were just mesmerized. even reese watched most of it in awe (until she fell asleep haha). we brought our friends and just had the best time. the girls wore their princess dresses and just thought it was so fun. we are so blessed to have people who think about the girls - and care about them enough - to gift us with such wonderful things. thank you... so much.
another awesome thing we did this week was go take bluebonnet photos.
if you have ever lived in texas, you know what a huge deal it is to get your photos in the bluebonnets. i've done these with the girls every year and couldn't wait to take them out.
it went alright haha here are some reese outtakes, first (no i didnt get rid of the people in the outtakes) ---
and now to my favorites. miller didnt last long, as you'll see ;)
it was wonderful. this week has turned out pretty good. aidan's dance competition photos coming soon ;)
thank you for every prayer and thoughtful message. each one means so much. and God is, as always, listening.