Tuesday, March 25, 2014

second to last.

this morning we came down to dallas children's for the 2nd to last big chemo.

reese has felt a lot better since she came home from the hospital after last week's sepsis.

i wrote something else in the last sentence, first. but then deleted it and typed something else bc every time i say reese is "feeling so good!" or something similar… i get a reminder kick in the ass.

everyone just said how good she looks. the whole month has been sick reese. RSV, low hemoglobin and belly aches, sepsis. just too much.

we made mad kitty cat meows at nurses. MEOW. ::catscratch:: reese laughs so much when i do it. usually, i reserve it for bad drivers and have my whole car full of kids in hysterics.

but today, i meowed at nurses.

her port was already accessed since we're doing IV meds at home. so thats easy. her hemoglobin is a bit low so we'll get blood tomorrow before we go home.

our oncologist came in and was talking about the "home stretch". april MRI will be our "baseline" for now. last chemo the week after that. july MRI will be our next one. remember, we are on vaca in july - so i'll wait, likely, til we get back, for that MRI. or maybe not. i dont know if i want to worry all vacation? or if i want to find out news before we go? what if its bad? maybe its awesome and we can celebrate? maybe ill let them decide…

he went on to talk about how october would be the next MRI. and then we could probably get her port taken out.

WHOA. WHOA. WHOA. slow down. ha.

i asked if i had to start taking her to a "regular kids" doctor. luckily no. not until her port is out. haha. good thing. all summer, we'd go once a month for port flushes and an appt. thats it. unless she got a fever.

so here we are, just hanging out. well, reese is sleeping. all of her meds are in and done and now we just have fluids til morning. so far, so good, for the day. seems too easy at the end… 

i have a month to decide what i want to do for reese's last chemo. i think i want all the kids up here with us. maybe. i dont know. its a huge deal, of course, but i almost dont know if i want to "celebrate" or not, in a big way. 

what i DO want, though, is a bit of help in making reese's end of chemo video. if you want to send reese a photo (camera or cell or whatever) of you or your kids holding a sign with a note to reese, i'd lovelovelove it. amandaskelte@gmail.com or message me on her facebook page. i want something to show her later. to show her how many awesome prayer warriors she had. and how many people truly love her. it overwhelms me, to this day. and i want her to know. so please send them to me over the next few weeks.  share with your friends who know of reese, if you'd like. i cannot wait to put this all together.

i have a blog coming about dance competition for aidan last wkend. and corbin turns 3 months tomorrow. but i have pics to upload for that. i let aidan stay home from school yesterday bc she was so exhausted - and it was nice to have her at home with me, just hanging out. sawyer will have her chance next week, i think. 

maybe i'll sleep peacefully tonight. im trying my best not to just crawl into reese's bed while she's comfortable and sprawled out. but we'll see how long i hold out ;)

6b272986b45611e3b34e0e1aae3e6422_8 168d08d8b44b11e3b08c0ea9da6dba5b_8 d7aca766b43d11e3a8701285f9dba909_8 019ec9a0b39911e3b80012474b9cd2e5_8 8e8dfb42b39411e3a85a12800e4fce3e_8 c6f462dcb37111e3bd540e4cd1fa8f5b_8 dd9f3f86b2f211e39c1412d6a650978d_8 f999554eb2ef11e38374121bb4bb9875_8 bb8b0f60b2d411e393db0eadff9070d3_8 16d0d6b6b08711e3b5750e3183fdef5a_8 949817b4b05d11e3842412213133cde8_8

No comments:

Post a Comment