Friday, January 31, 2014

i'd call that busy.

oh man. last wkend was a busy one.

i should backtrack, first, and show you these adorable pics of reese and miller in our old bathtub. because at the end of the blog, we'll come full circle in the new one ;)


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so. we moved. last week we spent tuesday/wednesday getting the house painted and clean. thursday moving, friday moving, sunday morning moving. (yes we hired movers on saturday, but EJ got a TON done on thursday and sunday - keeping that ridiculous mover cost per hour, down).
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and in between that - from friday night to saturday night - aidan had dance competition.

i took corbin. who was an angel, of course, with us. we checked in friday night and had to wake up saturday morning at about 6am to be downstairs by 7:30am to start the convention classes. competition started at 330pm or so. aidan had 2 dances - one sweet lyrical and then a sassy dance :) they did awesome. i am so proud of them.

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this week, we've stayed up late unpacking, organizing, writing lists of things we need. hanging up clothes that didnt make it on a hanger. tossing MORE things into the donation pile...

but on monday, i learned something new about this house - when i heard WATER running in my bathroom.

"we wan' baff!!!"

and they had already started the process. (luckily its high lol they cant climb in, but geez, now we've blocked it off lol)


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THEN we had chemo, this week. we went in tues afternoon, hung out with other little bald friends, and left wednesday morning. reese was a BEAR tuesday morning - and were told she had a double ear infection. luckily, we were there to get abx (and she's on them til mid feb). on thursday morning, we had to go into legacy to get a "quick" infusion of the second etop/vp16 dose. i took miller with us at first. ummm... it was not quick. my dad came and picked up miller before she exploded with "omg its naptime" -itis. lol

as an update, the oncs did talk about the last MRI (which we didnt get a call about) - it looked great! all the "ribbons" were gone and tumor just keeps looking smaller.

i had a few people ask me about the end of chemo - and i just wanted to touch on that a bit. march (maybe 1st wk of april) is her last chemo... for now. so what happens is we have an MRI in april (as already scheduled). that will be her baseline of "seeing how it looks" 3 months later. IDEALLY, whatever is left is just brain tissue scarring. and that in, then, july, nothing has changed. and then that nothing continues to change FOREVERRRR. :)

if something does change, for the worse, then we will deal with it then. if we see anything out of the ordinary at any time, we'll move the MRI up. but for now, we're praying that i can work up the courage to feel *happy* about chemo ending. and that God, alone, without chemo, will protect that head of hers from here on out. so that is my prayer request.

other than that, im going to try to plan ahead... instead of planning only for now. there's a lot of future of ahead of us.

(follow us on IG: punkfictionv4)

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Tuesday, January 21, 2014

finally sitting down.

::yawn::

this week is exhausting and only getting worse.

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we move this week ::confetti::

as an update: we [finally] closed on the houses last week.

we have been packing like crazy people. but still, somehow, the house doesnt look any more packed than it did ;) its like a black hole of items.

yes we have purged. oh holy hell have we purged. donated, big trash day'd… you name it, i've done it. if i havent used it - its gone. i feel super refreshed about it, actually. but its still seven people in this house - so a lot of stuff.

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like clothes. ::twitch:: and toys. and things i throw away that somehow come back out… #livinghell

anyway. last week we had reese's hearing test: it went awesome. except when she would respond by meowing ;) - which is not really surprising, considering we give her "kitty cat meds!!" (sometimes puppy) and she takes them super easily now lol

she took the week off of school because of low counts. thursday night (i think it was thursday?) she had a fever. 100.5 - so we called. they said wait 30 mins. at that point it was 99. and then nothing 30 mins after that. thank heavens.

a week ago monday (the 13th), reese had an MRI. it was in the afternoon and was head/spine so it took foreverrrrr. but no, still no call from them. truly, i feel at peace with them not calling. we had the MRI in december that showed tumor shrinkage. we were looking at those other spots that she had with the meningitis to make sure it wasnt something weird, in her head, making her sick. but since the abx worked, she's back to her normal, sassy self - and we haven't had a call… im going with "no news is good news" and that there was simply nothing to report. i normally would have seen them on tuesday and then again today, but we only had labs and they were at legacy, not downtown. so i didnt see the onc. but really -- keep your prayers going that im right ;) we have our normal appt next week before admission for cisplatin/vp16.

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hmm. what else… OH my boobs hate me. so thats neat. my life has been: i got thrush. ouch. feeding hurt so bad, id pump and then feed her, but she was so tired that we went too long. then i got clogged ducts that turned into mastitis. so i did vinegar/water rinses, gentian violet, i am now taking diflucan and an abx, corbin is on diflucan, too. i take a probiotic and grapefruit seed extract - and i also have APNO. if i didnt have these tiny cuts on my tatas right now - all would be dandy and cleared up. :( its been miserable. [purple milk and face from the GV].

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so thurs/friday is our official "movers are coming" dates. painters tomorrow. dance competition friday night and all day saturday (lol have fun moving, EJ!!) for aidan. and i'll be in packing hell until then.

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:) wish me luck. i will post updates on IG [punkfictionv4] throughout the week. :)