Friday, April 29, 2016

another stable day.

It took longer to say hi to me this time at clinic after the MRI. This, likely has nothing to do with me and more to do with being busy with, ya know, other people. But it sort of made our hearts palpitate a bit more.

I called EJ and he felt like he needed to leave the office for a bit - which is weird bc he never gets anxious about MRIs. Or, rather, he doesn't tell me that he is. So, this sort of sent me in a nervous spiral until finally they came in and said the sweetest word of STABLE.

Now, our stable is sort of different than other stables, maybe?

Reese's tumor moves all of the time. Sometimes smaller one way, and bigger another. And then the next month will be opposite. Sometimes it will shrink and then fill back in. Sometimes it won't. We look at similar slices every month so we can get see what actually is moving and decide if we want to stay on vinblastine or not. But again, we do.  (don't judge size by my terrible outlining down below).

But you can see that generally its not a huge difference - and that we can push time on vinblastine even longer - which is essentially the point for now. 

I get a lot of questions about "well what will you do next?"and that answer is the inhibitor(s) that are used for her BRAF mutation (v600e for my fellow momcologists). That is a daily pill for something like 2 years, assuming that it continues to do it's job for that long. 

Next MRI is in 3 months - which is forever away, of course, but when July hits, I will feel as if we were just here

Follow daily on instagram. and always comment or email w any questions. 


  1. such good news!! can i ask how long the plan is to keep on with the vinblastine before switching to inhibitors? such a long road you're all on but Reesey always seems to have a smile on her face, what a courageous (and super cute) girl she is!!

  2. So good to hear that the medicine is still working