Saturday, February 23, 2013

as a whole.

as a whole, life seems to feel.... good.

reese feels good.

we went for chemo on tuesday. cisplatin first. then etoposide (vp-16). i got there at about 3pm. got a room about 3-4 hours later after hanging out in the infusion room. and then they started chemo at, like 9pm.


one round of etoposide the next late afternoon and we were sent home. high sodiums (about 153?), but we were comfortable handling that. the next afternoon we went back for another etoposide and now we'll just go back on tuesday for labs.


reese has puked a few times a day. we stay on top of it with zofran. one night we did alternate between that and ativan, but over all, it doesnt bother her necessarily. she just pukes and goes back to bed or back to what she's doing after we clean her off and change her clothes.

they say cisplatin's side effects of puking "peak" at day 4-5, so we still have a bit... but she feeeeels good.

she talks, she uses her right hand as an assistant and is much more aware of it, she laughs all day, is sneaky ;), and is just overall so normal.


i made the mistake of watching her "going home" video last night. she was so different. its no wonder that the oncologist is just amazed at "how good she looks!!!" - she was just so weak. didnt really hold herself up, was so... sideways (with her eye and smile) compared to now. all of it was so different.

so today i am thankful of how good she feels. and praypraypray that she only gets better with every chemo treatment.


this past week, ashley and i went around town scouting for new locations. we drove around town with kids upon kids packed into my car.

on thursday night, i let loose. i let aidan and sawyer have a time to remember.

puddle jumping2 puddle jumper5 puddle jumping10 puddle jumping9 puddle jumping7 puddle jumping8 puddle jumping6 

today was a fun day, too. aidan had soccer this morning, then dance at 1pm. we went and ate lunch, came home for naps, then i took ASM to the park while EJ took reese to some guy store that i have no interest in ;)

they did their fave thing almost the entire time.... the swings.

ASM park feb1 ASM park feb2 ASM park feb3 ASM park feb5 ASM park feb7 ASM park feb6 ASM park feb8 ASM park feb9 
tomorrow we have nothing, really. hopefully not a lot of laundry puke.

after my vent session a post or two back, i feel better. i feel like we are at a place where we just are getting into a rhythm and its nice.

i wanted to add this, too -- MILLER'S FIRST BIRTHDAY VIDEO!! ***click!!

also, in the IGs you'll see aidan's hair all up and cute for dance --- i don't think i posted this on my blog, but HERE is aidan and 3/4ths of her mini squad performing their dance for only the 2nd time. and may i say, i think she's awesome ;)

and to answer this question, which i get asked a lot:  when is the next MRI? this i am not 100% sure about, but i *think* it is going to be before we start the next round. that will be 2 months. i will ask on tuesday. :)

alright, on to the IGs of the past few weeks!! (punkfictionv4) -- remember the first hospital pics here are from her sedated hearing test to get a baseline (etoposide can reduce high frequency hearing....)

2d4bb098745911e28d0622000a9e13b7_7 222a88b873ac11e2bbaa22000a1fb198_7 88b9938c745911e2b06022000a9e289e_7 9509096a752111e2aeda22000a1f973b_7 ae0302bc765811e2b1d222000a1fb859_7 5b76558476cc11e282fd22000a9d0df2_7 82819bcc76cf11e28ad722000a9f1498_7 8822203a76dc11e2914122000a9f1439_7 3a13a60a7a9911e2ac5122000a9f14f8_7 a6ad2f4a77ea11e289dc22000a9f12b0_7 ef606a8c78bb11e29b1a22000a1fb711_7 797f300079f611e2b39c22000a1f8adc_7 b7f759ec798911e2bf5922000a1f8cdc_7 470b9cfc77e011e2bbd422000a1f9ab2_7 db7f4e58779311e28faf22000a1f99f9_7 cb7e3e527ad511e2bbe622000a9f1270_7 3c9f22567b8311e2984822000a1f9707_7 f1fa54a87ba211e2bdb622000a1f9860_7 ef87daa67c9711e2b20722000a1f97fa_7 b280a3047bcf11e2b4e822000a9f130c_7 c237b2e87d3611e2a3e722000a9f09d0_7 217efbb07d3411e29f2e22000a1fb37d_7 75a3b1a87e0c11e2b23022000a1f9ad5_7 729b207a7e1311e2902022000a1ddbd3_7



  1. So happy that things are better for you guys right now. Your strength amazes me!

  2. A is quite the dancer!! Such a cute video!!! I am so happy you guys are doing so great!!

  3. Love these pictures. You are amazing.

  4. <3 Praying and thankful for some normal and no more puke! :hugs:

  5. So glad the road is looking good! Beautiful pictures!

    Ramblings of a Suburban Mom

  6. Beautiful pictures as usual! Reese looks so so good!!

  7. City Micro is the best stroller ever!

  8. I'm not one to add comments normally. Your pictures are fabulous. And your birthday video made me smile, laugh and cry. Miller is beyond precious and has such a beautiful baby girl smile. Your family is the epitome of what a family should be. You are blessed to have four beautiful, talented, loving little ladies and they are so so so lucky to have such amazing parents.

  9. I am so, so damn ecstatic to read that sweet, dear Reesey is doing better. Just the BEST news to read.

    Also, she kind of reminds me a bit of Charlie Brown right now - with the bare noggin' and chevron scar, you know? ;) Lol, little beauty!

  10. oh my gosh. the pics are so beautiful i almost cried... beautiful, beautiful, beautiful, amanda....