Wednesday, January 23, 2013

a tiny bit.

this was a long weekend.

tuesday was our MRI. the MRI to tell us whether or not the chemo was working.

i get there and do labs at 10, get done with those quickly and then walk around with a very annoyed reese for 2 hours. normally when we go to the chemo clinic, we go and then we leave. this time we didn't. she was ticked. ;) so i had to keep pushing the stroller bc sitting meant her hollering for the car. finally she fell asleep.

our MRI was schedule at 1:20pm and we finally went in at 3pm. she had, again, fallen asleep on me while waiting.

it was a long MRI. at 5pm, they came out to tell me that her port "wasn't working" so they deaccessed and then reaccessed. and then they put an IV in her hand. so that took time -- but still too long, in my opinion.

we went home and waited. they said they'd call last night. but then again, that was when the MRI should have been over by 3pm. not started then. so i went to bed thinking "if it was horrible, they'd call, right?"

and i was right....

this morning i get a call from dr. b and he first said "well, id say its good news" :) he said, in multiple ways (ha), that "the swelling has obviously gone down from the previous MRI bc that was right after the 2nd resection. but still it looks as if the actual tumor mass was a tiny bit smaller".

which was MORE than i could have ever hoped for. all i wanted after the worst news of my life, that the tumor had grown and the previous chemo wasnt working... was to hear that it wasnt growing anymore. it being the same size would have made my day, but to say it was smaller?


i was on cloud 9 the rest of the day.

its over 70deg here right now so my 2 best photographer friends and i went out to the park to snap some pics. i wanted to get pics of awesome reesey on this awesome day.

reese3 reese5 reese6

with her best friend... miller (or "niller" to reese)

reese2 reese4

we got some others of sawyer with her friend...

L and S2 L and S1

and then miller - and one with D lol showing personalities ;)
miller1 D and M1

it was just a great day.

we were supposed to go to chemo today, but its just, bottom line, too full -- so we'll go tomorrow. we have a lot more chemo to go through. 17 more months, i believe? so i can't wait to get rid of this thing once and for all. keep the prayers coming :) God hears us.

here's a short IG (punkfictionv4) recap of the past week.

#reesey #gingerfight #girlyforthewin going out with @lilydenver today That's one good looking (almost bald) kid #hairschmair #reesey #gingerfight #sawyergrace #4mustbeawesome #ilivewithkesha #fakeglasses @jessicadrobbins - like the hair?? ;) Those. Are. Curls. #squuueee #millerpaige This was not planned lol #sawyergrace #lilybleu @lilydenver #reesey what are you doing up? #gotobedkid lol Oh dear. #dancemom #competitionisnextweek #aidkaid #aidkaid #dancemom #competitionisnextweek #reesey #otb @annag0529 thank you!!!! #familyfunday #ikea #millerpaige #happiestbabyever @finallyhappyme oh friend. I love it. "For this child I have prayed..." #reesey had her backpack and jacket on lol says she's leaving haha #aidkaid and #sawyergrace having a #sleepover in Aidan's bed. Look how naughty they are lol I heard them run downstairs and steal things.... #sneakysisters I went to make lunches and found them in bed  #reesey #gingerfight #aidkaid #sawyergrace #sistersarethebestmedicine Color version when I got them to look #reesey #aidkaid #sawyergrace #sistersarethebestmedicine #gingerfight #prayersforreesey #reesey #gingerfight #prayersforreesey coloring before labs. 2 new friends that (sort of) resemble our dogs lol #reesey Bored. We have too much time between labs and MRI. #reesey keeps begging for the car. #prayersforreesey #gingerfight #sawyergrace slept in Aidan's room again. Only it seems she got her DVD player and decided miller's crib was better #sillygirl #reesey #gingerfight #prayersforreesey @lilydenver @brittneyjoy412 photo fun today ❤


  1. Oh my goodness, so many beautiful pictures! I'm so glad it was a great day, and I am SOOOOOOO HAPPY for GREAT news! God is good! I will not stop praying for sweet Reese. :) She has a faithful follower here!! :) Stay Strong Amanda! You are an amazing momma!

  2. Thank God! Always praying for your beautiful family! Hugs :)

  3. Those are some BEAUTIFUL pictures. So, so glad to hear the good news!

  4. Absolutely THRILLED for you!!! Love the pics too, beautiful!! xo

  5. I was so ecstatic when I heard the news!!! Reading the good news again brings back more happiness! #gingerfight all the way.:)

  6. Thank the Lord!!!!! =) What wonderful, amazing news for Reese and your whole family. I LOVE the picture of Reese with her arm around Miller... melt my heart.

  7. Reese is sooo cute! That pic with her and a grilled cheese is adorable, it looks like she's thinking "now we're talkin!" Great news!

  8. I love all of the photos but that first image of Reese took my breath away. She is beautiful. What a little fighter. Such great news!

  9. Those pictures of Reese and Miller are beautiful. There's something extra special about sibling love. :)

  10. I love the pics of all the girls! Thank God he is in our corner. Still praying for you all, just keep up the good spirits in your house that shine through the photography!